ENGLISH

1.Supporting Hospital Visits Childhood cancer is a rare disease. There are only about 200 high performing hospitals nation wide and it is often the case that patients travel long distance to get effective treatments. We cover hospital visit expenses for 100km plus travel and also accommodation for accompanying family members up to 500,000 yen (depending on the household income) per year per patient.

2. Supporting Single-parent Households When faced with a child's months-long (oftentimes more than a year) hospitalization, single-parent households are especially vulnerable to financial burdens.
To reduce its negative impact, we provide hospitalization allowance for single-parent households with children with cancer.

3.Scholarship Cancer survivors will be awarded scholarships for universities, colleges or vocational schools. We grant scholarship annual 480,000 yen per student for the minimum of mandatory period required for the graduation.

4.Medical Beanie Gift We gift medical beanies made with cotton to children suffering hair problems caused by the treatment.

5.Funding Support Camps Support camps provide precious opportunities for children with cancer and their families to participate in outdoor activities. We cover expenses for support camps held by support groups.
Funding require those camps to be accompanied by primary care physician or nurses giving the patients and their families a chance to interact and exchange information not only with other patients and families but also with the doctors and nurses.

6.Assisting Survivors Suffering Late Effects with Employment In some cases, survivors suffering late effects experience difficulties finding employment. We provide opportunities for "workplace experiences" and "job trails" to help them with recruitment.

7.Setting Up Study Rooms Since treatments for childhood cancer often require months of hospitalization, patients treated at hospitals without hospital school will only have their bedside space for schoolwork. Also, there are no hospital schools for senior high school students. We help hospitals set up study rooms equipped with oxygen masks and emergency communication devices.

8.Survivors Network "Survivors Network" is an information service for survivors of childhood cancer. We provide registrants with information about free admission invitation for various events such as music concerts, baseball games, workshops, and so on. These events are good opportunities for survivors and their families to exchange information with each other.

To increase survival rate and ultimately conquer childhood cancer, we provide funding for research in childhood cancer and late effects. Also, grant a researcher of childhood cancer for international study every year.

1.Charity Events To raise awareness about childhood cancer we hold charity events such as walk, marathon, concerts and so on.

2.Providing Latest Information in Japanese Cancer Information Japan Site operated by Translational Research Center for Medical Innovation (TRI) publishes most up-to-date Physician Data Query from National Cancer Institute (NCI, United States). We cover the expense for Japanese translation of the articles on childhood cancer.

Gold Ribbon Network (GRN) is committed to complying with the Personal Information Protection Law and other related laws and regulations regarding our handling of personal information. GRN has established the following privacy policy and make efforts to handle personal information properly.

Acquisition of personal information

We will acquire personal information by lawful and appropriate methods to the extent necessary to achieve the purpose of use of such personal information.

How we use your personal information

We may acquire the following personal information:

• Profile information including name, sex, occupation;
• Contact information including home address, phone number, email address;
• Information regarding payment methods including credit card details and bank account details; and
• Any other information entered, submitted or sent to us via entry form, application form or other methods we specify.

We will use personal information acquired by us only within the scope of the purposes below:

• Registration, identification, examination and business communication in relation to providing or receiving support and recruiting activities;
• Procedures of receiving donations;
• Delivery, display and effect measurement of advertisement;
• Guidance and response to inquiries regarding support provided or received by us and recruiting activities;
• Offer of information such as notifying events or sending membership magazines, and request for cooperation on our activities;
• Handling cases of violation of our terms or policies (“Terms etc.”); and
• Notifying changes of Terms etc. regarding support provided or received by us and recruiting activities.

The use of personal information outside the scope of purpose

We will use personal information only to the extent necessary to achieve the purpose of use stated above and will not use personal information for any other purpose without the consent of the relevant person except as otherwise provided for by laws or regulations or unless the purpose of use is separately notified or published.

Provision of personal information to third parties

We will not provide personal information to any third party without the consent of the relevant person, except where we provide personal information to third parties with necessity as stated below:

• In cases where we entrust the handling of personal information to third parties in whole or in part within the scope necessary to achieve the purpose of use;
• In cases where personal information is provided according to a merger, acquisition or other business transfers;
• In cases where the provision of personal information is necessary for cooperating with national or local authorities, or an individual or entity entrusted by such authorities in executing the affairs prescribed by laws and regulation, and where obtaining the consent of the relevant persons could impede the execution of the affairs; or
• In other cases where the provision of personal information is permitted in accordance with the Personal Information Protection Law or other laws and regulations.

Measures for safe management of personal Information

We will take necessary and proper measures such as establishment of organizational systems for maintaining and managing the security system and provision of education and training to employees, and manage such information properly to prevent the divulgence, loss, damage of personal information. We will also properly supervise our employees regarding the handling of personal information, and if we entrust the handling of personal information to any third party, we will supervise the entrusted third party to ensure that the entrusted third party manages personal information properly.

Disclosure of the personal information

If we are requested by a person to disclose his/her personal information held by us pursuant to the Personal Information Protection Law, we will disclose the personal information (or inform of its lack of existence) to the person requesting the disclosure upon confirming that the person who made the request is the person of the relevant personal information. However, this will not apply in cases where we are not obliged to disclose the personal information pursuant to the Personal Information Protection Law or other laws and regulations.

Correction, deletion etc. of the personal information

If we are requested by a person to correct or cease utilization of his/her personal information based on the provisions of the Personal Information Protection Law on the grounds that the personal information held by us is contrary to the fact, or if we are requested by a person to cease utilization of his his/her personal information based on the provisions of the Personal Information Protection Law on the grounds that the personal information held by us is used outside the scope of the purpose published in advance, or was obtained by deception or other unlawful methods, we will make a necessary investigation upon confirming that the person who made the request is the person of the relevant personal information. Based on the results of the investigation, we will correct or cease utilization of the personal information and notify the person to that effect. If we have decided not to correct or cease utilization of the personal information, we will notify the person to that effect.
If we are requested by a person to delete his/her personal information and we decided that it is necessary to meet the request, we will delete the personal information upon confirming that the person who made the request is the person of the relevant personal information, and notify the person to that effect.
The above does not apply in cases where we are not obliged to correct, cease utilization of or delete the personal information pursuant to the Personal Information Protection Law or other laws or regulations.

Change to this Privacy Policy

We may change this Privacy Policy when necessary. If the change requires consent from the person under the laws and regulations, the revised Privacy Policy will only apply to the persons who gave consent through the means we specify. If we change this Privacy Policy, we will publish the revised version of this Privacy Policy together with the effective date, by posting it on our website or via other appropriate means, or notify the relevant person.

The Japanese version takes precedence

The original of this Privacy Policy is the Japanese version. In cases where any differences occur in interpretation between the English version and the original Japanese version, the Japanese version shall prevail.

Contact

For any comments, questions, requests for disclosure etc., or other inquiries regarding our handling of personal information, the contact desk is GRN office. We will appropriately and swiftly respond to any complaints concerning our handling of personal information.
Please contact us through the online form below.
Gold Ribbon Network
Mejirokeyaki-mansion 204, 2-21-8 Nishi-Ikebukuro, Toshima-ku, Tokyo, 171-0021, Japan
Via this online form

Handling of Personal Information of Residents of the EEA

In addition to the main body of this “Privacy Policy”, this Section of “Handling of Personal Information of Residents of the EEA” shall apply to the handling of personal information of residents of the EEA where the General Data Protection Regulations (GDPR) is applicable. In the event of conflict or inconsistency between them, this Section shall prevail.

1. We may acquire the following personal data:
(1) User name and password;
(2) IP address, cookie information or any other online identifier: or
(3) Location information.

2. We may acquire personal data when:
(1) you make donations to us;
(2) you register with us via online;
(3) you browse or use our website; or
(4) you send us inquiries or requests.

3. Purpose of use and Legal basis under GDPR for processing the personal data which we acquire and hold are as follows:
(1) Donor: Procedures of receiving donations and any communications related thereto
Legal basis: Consent of the data subject (GDPR Art.6(1) a) or Legitimate interest (GDPR Art.6(1) f)
(2) Charity runner: Registration, identification, examination and business communications
Legal basis: Consent of the data subject (GDPR Art.6(1) a) or Legitimate interest (GDPR Art.6(1) f)
(3) Response to inquiries and requests from the data subject
Legal basis: Consent of the data subject (GDPR Art.6(1) a) or Legitimate interest (GDPR Art.6(1) f)

4. When we transfer personal data to contractors, the personal data may be transferred to the counties outside the EEA. We will transfer personal data only to the extent:
(1) the transfer to a country may take place where the EU Commission has decided that the country ensures an adequate level of protection of personal information (GDPR Art. 45);
(2) the transfer to a third party with whom we executed the standard data protection clauses approved by the EU Commission (GDPR Art. 46(2)); or
(3) the transfer takes place on one of the conditions listed in GDPR49(1).

5. We will store personal data for the appropriate period determined based on the criteria of the respective statutory retention period. After expiration of the period, personal data which is no longer necessary will be deleted in accordance with the respective retention policy.

6. In addition to the matters provided in “Correction, deletion etc. of the personal information” of this Privacy Policy, a resident of the EEA has the rights to make the following requests in connection with his/her own personal data handled by us. Please contact us through the online form (https://www.goldribbon.jp/contact) to make such requests.
(1) access (disclosure);
(2) rectification;
(3) erasure;
(4) restriction of processing;
(5) data portability;
(6) object to processing; and
(7) withdrawal of data processing consent.

7. Lodging a complaint with a competent authority
A resident of the EEA has right to lodge a complaint on the processing of their personal data with a competent supervisory authority.
http://ec.europa.eu/justice/article-29/structure/data-protection-authorities/index_en.htm